Wednesday, May 21, 2014

Waiting.

Once again, I'm sorry for the lack of posts.  I've been busy waiting... waiting for the new drugs to do their thing.  So far, not very much is happening, except sometimes I think my hair is thinning (it's possible that I'm just being super paranoid because of the possibility of losing my hair, though...).  One good thing is that I haven't had very many aches and pains lately, which could be a sign that the methotrexate is helping with that! Unfortunately, the fevers and fatigue are still kicking my bum, especially in the morning.  I have a very hard time getting going in the morning, and I typically have to lay down right after breakfast to rest for a while before I get started with the rest of my day.  Thankfully, my cat has decided to be super cuddly lately, so he's been keeping me company during those yucky hours.  God's cool like that.  He keeps reminding me that he really really (x infinity) cares about me... enough to give me fluffy animals to cuddle when I feel horrible.  That's really good news.

My primary care physician started me on a new medicine to help with the GI issues, but that will take a couple months to do it's thing, too.  2 of my walks this week ended in the "explosions" that we hoped would never happen again, but today I didn't have any pain during/after my walk!  I saw my GI doctor today, and I weighed in at a massive (just kidding) 83 pounds, which is scary low.  My weight is his biggest concern right now.  I had decided to add avocados to everything (because they're full of good fat), but it turns out they make me puke.  They weren't very good, anyway.

I am officially done with all of my pre-requisites for physical therapy school, and I'll be starting that in June! Sometimes A lot of times I don't know how I'm going to get through it, seeing as my body is still busy attacking itself, but God's really good at making the impossible possible.  For now, I have 2 weeks to rest up, see some friends, and watch a lot of Sherlock. =)

I'll be seeing my rheumatologist a few weeks after I start classes to check my blood counts, see how the medicine is affecting me, and to decide if we need to change the dosage.  It's a slow process, and sometimes I think I'm going to go crazy.

I've pondered the possibility of not blogging anymore, because I feel weird writing about myself and, short of a miracle, fighting this disease will be a life-long journey for me.  But, blogging continues to be the easiest way to keep friends and family updated, and to actually have the chance to express my thoughts about everything (rather than the typical 8 second update of "trying new meds, I'll let you know if they do anything" that I'm really good at blurting out now).  So, hopefully this serves it's purpose of doing that.... and hopefully God's awesomeness will be more evident than this disease's yuckiness.

Thank you SO much for praying for me.  I'd hug every one of you if I could!

1 comment:

  1. Great seeing you today. Hope the new meds start to do the job. Keep blogging if it helps. You and your smile are an inspiration to us all. If you like Martin Freeman on Sherlock, check out Fargo on FX. It's one crazy show.

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