Thursday, November 17, 2011

Cereal Boxes and Doctors

When I was younger, I used to save up box tops from cereal boxes and send them in to get whatever toy they were advertising on the back of the box.  I remember they always said "please allow 6-8 weeks for delivery."  6-8 weeks!?!  That feels like forever when you're 8 years old!!  I used to get so excited that I'd check the mail everyday... starting the day after I sent them in... just in case.  And of course, after a few weeks had gone by, I would completely forget about it.  Then, one day I'd get a toy in the mail that I had completely forgotten I had ordered!  Those were the best days.

3 or 4 weeks ago I called the clinic and sent a message online to one of my doctors there to see what they wanted me to do next.  My doctor never replied to my message, and then she kept calling me during bio lab when my phone was off, so we were never able to actually talk to each other.  At first I was going crazy and I didn't think I was going to be able to stay sane if I didn't hear back from her ASAP....  then, I forgot about it.  I've had a couple of other tests to get done in the meantime, so they've kept my mind occupied when it comes to figuring out what's wrong with me.  Yesterday, I checked my email and I saw a nice little "You've got a new message on MyChart (Cleveland Clnic's website for us sick people)."  I was almost as excited as I used to be when I'd open the mail box and find a toy.  Unfortunately, the message that I got was probably the equivalent of getting the toy and then finding out that it's broken.  All it said was "Sorry I have not been able to reach you. Your breath test results are negative.  I have no suggestions for further testing.  The negative results have been reassuring." 

REASSURING?!?! I don't know about her, but having no reason as to why I feel like crap and have a fever everyday is not what I like to call reassuring!  After a day of freaking out that I wasn't sick again (because that's what I do every time a doctor seems to be giving up on me)/being super frustrated/freaking out that I'm always going to be sick, I'm a little more sane now.  It just takes a day or 2.  And, after talking to my dad on the phone, I now realize that she wasn't trying to be a jerk.  She was trying to pull the whole "but on the bright side!" thing, which gets really old, but at least has good intentions behind it.

We're going to wait until I come home for Thanksgiving break to figure out what to do next.  My oncologist told me that I could go back to see him to talk about having a PET scan if I went to an Infectious Disease specialist and Cleveland Clinic and didn't find out anything, so we might give him a call.  There are also a few other places that my eye doctor has recommended (including the Mayo Clinic), but they all require more traveling.  I'm clueless about what to do next, but at least all of my doctors now actually agree that I'm sick... that's a start.

2 comments:

  1. Sending a prayer of encouragement and wishes for a very Happy Thanksgiving!

    Pam Ford Davis

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  2. Thank you! :) Happy Thanksgiving to you, too!

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